Your Name
Your Mailing Address
Date
Journalist’s Name
Publication Name
Publication Mailing Address
Dear _________,
My name is ___________ and I have Geniculate Neuralgia.
Geniculate Neuralgia (GN), also known as Ramsay Hunt Syndrome, nervus intermedius neuralgia, and Hunts neuralgia, is a nerve disorder affecting the geniculate ganglion of 7th and 8th cranial nerves. Relatively little is known about GN making it a very infrequently diagnosed disorder. GN is often misdiagnosed as migraine headaches, cluster headaches, or Trigeminal Neuralgia. It is rarely diagnosed independently of an existing diagnosis of TN. There is no estimate of the number of people with GN.
GN results in severe, deep ear pain which is usually sharp—often described as an “ice pick in the ear”—but may also be dull and burning. Ear pain can also be accompanied by facial pain. This help to explain the frequent misdiagnosis of geniculate neuralgia as migraine headaches.
This pain can be triggered by stimulation of the ear canal, or can follow swallowing or talking.
(Your story here)
You would be doing a great public service by writing an article about GN for _________ (publication name.) If people were aware of this condition, misdiagnosis would be less common and early intervention would be more common.
I welcome the opportunity to discuss this with you. You can reach me at the above address or send me an email at ____________. Thank you so much for your consideration.
Sincerely,